Federal agencies would guide AI research on childhood cancer

The MAHA Commission must work with federal health and science officials to develop AI approaches for improving pediatric cancer diagnosis, treatment, prevention, and research. The initial focus covers the Childhood Cancer Data Initiative, its data platforms and tools, and research projects at National Cancer Institute-designated cancer centers. Projects may focus on combining data, predicting patient responses and treatment risks, finding biomarkers, and improving clinical trials. The order does not itself guarantee a cure, treatment, research award, or patient access to a clinical trial. The order sets this as the initial focus but gives no deadline for completing the work.

Federal officials must seek ways to increase investment from existing federal funds and encourage private companies to use advanced technologies for pediatric cancer research and care. The direction covers the Childhood Cancer Data Initiative and other federal efforts addressing pediatric cancer, along with private-sector activity. Any federal spending must follow existing law and available appropriations. The order does not set aside a new dollar amount or require private companies to participate. The order provides no deadline for identifying or implementing these strategies.

The Secretary of Health and Human Services must work to improve data exchanges and finalize standards for using patient information with AI. The work covers electronic health records, insurance claims data, and both structured and unstructured patient information used in research and clinical trials. Data exchanges must be safe and protect privacy. The order says patients and parents must control their health information. The direction must follow existing law and available appropriations. The order gives no deadline for finalizing the standards.