Bill would direct state offices to develop specialized Prader-Willi housing

The state disability office would recognize Prader-Willi syndrome as a high-need group and develop residential models and care standards. The bill identifies people with Prader-Willi syndrome who have intellectual or developmental disabilities as a distinct, high-need group. The models would serve people with Prader-Willi syndrome in certified residential settings. Models could include small homes operated by certified providers and would be developed under existing certified settings. The office would use existing funding sources, including Medicaid waiver services. Capital support for pilot homes and home changes would require approval from the state budget office. The bill would take effect immediately if enacted.

The state health department would support medical-need decisions, coordinate covered medical and behavioral supports, and check that residential models meet public health and safety standards. These duties concern specialized residential services and models for people with Prader-Willi syndrome. The department would coordinate services that Medicaid can reimburse, including nursing oversight, nutrition support, and behavioral health care. The bill would take effect immediately if enacted.