United StatesExpressing support for the designation of April 5, 2026, as "Barth Syndrome Awareness Day".
What it does
This resolution supports the designation of Barth Syndrome Awareness Day. Barth Syndrome is a rare, life-threatening genetic disorder of lipid metabolism that primarily affects males.
Where do you stand?
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Where it stands
- Introduced
- Adopted
Looking ahead
No hearings or votes scheduled.
History
- 2026
- Feb 11Submitted in HouseLatest
- Feb 11Referred to the House Committee on Energy and Commerce.Introduced