New YorkEstablishes the rare disease advisory council
What it does
Establishes the rare disease advisory council to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to care, and to make recommendations to the legislature and the governor.
Where do you stand?
Choose your position
Tell your reps
Take a position to see your representatives and ways to contact them.
Where it stands
- Introduced
- Passed 1st Chamber
- Passed 2nd Chamber
- To Governor
- Became Law
Looking ahead
No hearings or votes scheduled.
History
- 2026
- Mar 10RETURNED TO SENATELatest
- Vote recorded Assembly Vote. Result: pass.Lower
- Mar 10PASSED ASSEMBLYMajor
- Mar 10ORDERED TO THIRD READING CAL.47
- Mar 10SUBSTITUTED FOR A1296B
- Feb 10REFERRED TO WAYS AND MEANSMinor
- Vote recorded Floor Vote - Version: B. Result: pass.Upper
- Feb 10DELIVERED TO ASSEMBLY
- Feb 10PASSED SENATEPassed 2nd Chamber
- Feb 9ADVANCED TO THIRD READING
- Feb 52ND REPORT CAL.
- Feb 41ST REPORT CAL.283
- Vote recorded Health Vote - Version: B. Result: pass.Upper
- Jan 8PRINT NUMBER 1287BMajor
- Jan 8AMEND AND RECOMMIT TO HEALTHMajor
- Jan 7REFERRED TO HEALTHMinor
- Jan 7RETURNED TO SENATE
- Jan 7DIED IN ASSEMBLY
- Mar 10RETURNED TO SENATELatest
- 2025
- May 29ORDERED TO THIRD READING RULES CAL.291
- May 29SUBSTITUTED FOR A1296A
- Mar 19REFERRED TO WAYS AND MEANSMinor
- Vote recorded Floor Vote - Version: A. Result: pass.Upper
- Mar 19DELIVERED TO ASSEMBLY
- Mar 19PASSED SENATEPassed 1st Chamber
- Mar 10ADVANCED TO THIRD READING
- Mar 52ND REPORT CAL.
- Mar 41ST REPORT CAL.487
- Vote recorded Health Vote - Version: A. Result: pass.Upper
- Jan 30PRINT NUMBER 1287AMajor
- Jan 30AMEND AND RECOMMIT TO HEALTHMajor
- Jan 9REFERRED TO HEALTHIntroduced