New YorkEstablishes the rare disease advisory council
What it does
Establishes the rare disease advisory council to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to care, and to make recommendations to the legislature and the governor.
Where do you stand?
Choose your position
Tell your reps
Take a position to see your representatives and ways to contact them.
Where it stands
- Introduced
- Passed 1st Chamber
- Passed 2nd Chamber
- To Governor
- Became Law
Looking ahead
No hearings or votes scheduled.
History
- 2026
- Mar 10SUBSTITUTED BY S1287BLatest
- Jan 12AMENDED ON THIRD READING 1296BMajor
- Jan 7ORDERED TO THIRD READING CAL.47
- 2025
- May 29SUBSTITUTED BY S1287A
- May 29ORDERED TO THIRD READING RULES CAL.291
- May 29RULES REPORT CAL.291
- May 29REPORTED
- May 27REPORTED REFERRED TO RULESMinor
- Feb 4REPORTED REFERRED TO WAYS AND MEANSMinor
- Jan 29PRINT NUMBER 1296AMajor
- Jan 29AMEND AND RECOMMIT TO HEALTHMajor
- Jan 9REFERRED TO HEALTHIntroduced