HawaiiRELATING TO RARE DISEASES.
What it does
Establishes the rare disease advisory council to increase awareness and effective medical intervention for rare diseases. Establishes the rare disease advisory council special fund. Requires DOH and DOE to incorporate the importance of annual physical examinations for children in programs and literature.
More detail
Amends the insurance code to include coverage for individuals with velocardiofacial syndrome and other genetic disorders. Exempts from cost sharing. Appropriates funds.
Where do you stand?
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Where it stands
- Introduced
- Passed House
- Passed Senate
- To Governor
- Became Law
Looking ahead
No hearings or votes scheduled.
History
- 2025
- Jan 23Introduced and Pass First Reading.Latest
- Jan 23Referred to HLT/EDN, CPC, FIN, referral sheet 3Minor
- Jan 21Pending introduction.Introduced