IllinoisNewborn screening committee reviews conditions and recommends lab tests
The committee reviews newborn conditions on a federal screening list within a year, then recommends whether Illinois should screen for them.
What it does
The newborn screening committee reviews certain conditions and recommends whether the state should screen for them. For other conditions, a screening test and an FDA-approved treatment must both be available.
When the Department approves screening for a condition, it tells the State Laboratory within 60 days, and the lab must start screening within two years. If the Department rejects a recommendation, it explains why and what information is still needed.
The committee reports each year on the conditions it reviewed, its recommendations, the Department’s decisions, and the lab’s progress. A recommendation against screening must explain why and how the issue could be reconsidered.
Argument forReviewing available tests and treatments could help state officials make informed choices about whether to screen newborns for more conditions.
Argument againstThe review and lab deadlines could mean babies wait longer for screening when a condition meets the stated test and treatment criteria.
More detail
The committee reviews certain conditions and recommends whether the Department should add them to newborn screening. The committee reviews conditions added to the federal Recommended Uniform Screening Panel and other conditions that meet the stated test and treatment criteria. For conditions outside the federal screening panel, review is required when a newborn screening test is available and the FDA has approved a treatment. The committee reviews a condition within one year after it is added to the federal list or, for other qualifying conditions, after both criteria are met.
The Department tells the State Laboratory when it approves a condition, and the lab implements screening for approved conditions. These duties apply to conditions the committee reviews and recommends for newborn screening. If the Department rejects a recommendation, it must explain why and identify information gaps needed for reconsideration. The Department has 60 days after receiving a recommendation to notify the lab of an approval; the lab has two years to implement screening for an approved condition.
The committee submits an annual report on reviewed conditions, recommendations, Department decisions, and lab implementation. The report covers conditions reviewed by the committee and includes reasons and steps to reconsider when the committee recommends against adding a condition. The first report is due to the Governor’s Office and General Assembly by December 31, 2027, with a report due each year after that.
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Where it stands
- Introduced
- Passed Senate
- Passed House
- To Governor
- Became Law
Looking ahead
No hearings or votes scheduled.
History
- 2026
- Aug 21Public Act . . . . . . . . . 104-0843Latest
- Aug 21Effective Date August 21, 2026
- Aug 21Governor J. B. Pritzker ApprovedBecame Law
- Jun 30Added as Co-Sponsor Sen. Mary Edly-Allen
- Jun 29Sent to the GovernorTo Governor
- May 31Passed Both Houses
- Vote recorded Concurrence, Amendment 1. Result: pass.Upper
- May 31Senate Concurs
- May 31House Committee Amendment No. 1 Senate Concurs 054-000-000
- May 30Added as Co-Sponsor Sen. Cristina Castro
- May 28House Committee Amendment No. 1 Motion To Concur Recommended Do Adopt Public Health; 008-000-000
- Vote recorded Do Pass, Amendment 1. Result: pass.Upper
- May 28House Committee Amendment No. 1 Motion to Concur Assignments Referred to Public Health
- May 28House Committee Amendment No. 1 Motion to Concur Referred to Assignments
- May 28House Committee Amendment No. 1 Motion to Concur Filed with Secretary Sen. Julie A. MorrisonMinor
- May 22Placed on Calendar Order of Concurrence House Amendment(s) 1 - May 25, 2026
- May 22Secretary's Desk - Concurrence House Amendment(s) 1
- May 21Third Reading - Short Debate - Passed 107-000-000Passed House
- Vote recorded Third Reading. Result: pass.Lower
- May 19Placed on Calendar Order of 3rd Reading - Short Debate
- May 19Second Reading - Short DebateMinor
- May 7Placed on Calendar 2nd Reading - Short DebateMinor
- Vote recorded Do Pass. Result: pass.Lower
- May 7Do Pass as Amended / Short Debate Public Health Committee; 009-000-000
- May 7House Committee Amendment No. 1 Adopted in Public Health Committee; by Voice VoteMajor
- May 5House Committee Amendment No. 1 Rules Refers to Public Health Committee
- May 5Added Alternate Chief Co-Sponsor Rep. Camille Y. Lilly
- May 5Added Alternate Chief Co-Sponsor Rep. Jehan Gordon-Booth
- May 5Added Alternate Co-Sponsor Rep. Marcus C. Evans, Jr.
- May 5Added Alternate Co-Sponsor Rep. Michael Crawford
- May 5Added Alternate Co-Sponsor Rep. Nicolle Grasse
- May 5Added Alternate Co-Sponsor Rep. Michelle Mussman
- May 4House Committee Amendment No. 1 Referred to Rules Committee
- May 4House Committee Amendment No. 1 Filed with Clerk by Rep. Martha DeuterMinor
- Apr 27Assigned to Public Health CommitteeMinor
- Apr 17Referred to Rules Committee
- Apr 17First ReadingMinor
- Apr 17Chief House Sponsor Rep. Martha Deuter
- Apr 17Arrived in HouseMinor
- Apr 16Third Reading - Passed; 057-000-000Passed Senate
- Vote recorded Third Reading. Result: pass.Upper
- Apr 15Added as Co-Sponsor Sen. Lakesia Collins
- Apr 14Placed on Calendar Order of 3rd Reading ** April 15, 2026
- Apr 13Added as Co-Sponsor Sen. Sara Feigenholtz
- Mar 27Added as Co-Sponsor Sen. Graciela Guzmán
- Mar 26Added as Co-Sponsor Sen. Mattie Hunter
- Mar 24Placed on Calendar Order of 3rd Reading March 25, 2026
- Mar 24Second ReadingMinor
- Mar 11Placed on Calendar Order of 2nd Reading March 12, 2026Minor
- Mar 11Do Pass as Amended Public Health; 010-000-000
- Mar 10Senate Committee Amendment No. 1 AdoptedMajor
- Vote recorded Do Pass. Result: pass.Upper
- Vote recorded Do Pass, Amendment 1. Result: pass.Upper
- Mar 4Senate Committee Amendment No. 1 Assignments Refers to Public Health
- Mar 3Senate Committee Amendment No. 1 Referred to Assignments
- Mar 3Senate Committee Amendment No. 1 Filed with Secretary by Sen. Julie A. MorrisonMinor
- Mar 3Assigned to Public HealthMinor
- Jan 29Referred to Assignments
- Jan 29First ReadingMinor
- Jan 29Filed with Secretary by Sen. Julie A. MorrisonIntroduced
Healthcare