Federal health officials would coordinate a national plan for epilepsy

The Health and Human Services Secretary would carry out and update a national epilepsy plan. The plan would cover prevention, diagnosis, treatment, and efforts to cure epilepsy, including coordination across federal agencies. The Secretary would seek public comments and consider recommendations from groups working together in the epilepsy community. The requirements would end on December 31, 2035.

The Health and Human Services Secretary would appoint an epilepsy advisory council. Members would include federal officials, people with epilepsy, caregivers, health professionals, researchers, and nonprofit representatives. All council meetings would be open to the public. The council would meet at least quarterly and send its first report within 18 months of enactment, then every two years.

The Health and Human Services Secretary would assess progress and report annually to Congress. Reports would evaluate federally funded epilepsy efforts, recommend priorities, and describe progress on the national plan. Federal agencies with epilepsy data would share it with the Secretary as needed for the annual reports. Progress assessments would begin within two years of enactment and continue annually. These requirements would end on December 31, 2035.